I got a call yesterday from the Eye Clinic saying they had a cancellation today and could we make it at 9:45? Heck yes, we can! I have been waiting for this because as she grows more and does not stop looking at things close up, I feel more and more that she needs glasses. I know she can see far away shapes, like, she knows a slide is a slide... but she never really looks at things unless she can hold it to her nose.
Long story short - she needs glasses... big time. The doctor looks in her right eye with a lens and says, "oh my, are you ever myopic!" She is -7.5 in one eye and -5 in the other and then has astigmatism on top if it. This kid has NEVER seen anything in the distance in focus! I am SO excited to take her for her first walk or to even look at a book and not have her bend right over it and block the text! They said kids with myopia are usually the ones that keep their glasses on without trouble because they are actually SEEING now! This is also something that she will live with forever so it's best that we got on top of it now. I dropped her prescription off and got her fitted for baby glasses on the way back from the appointment and they should be ready in a week and a half! I'm hoping that by next weekend my baby girl will see!
Long story long... and it's gonna be long because I find it SO fascinating!
First of all, I was worried she was going to be cranky because she, like me, is not a morning person. She wants to be left alone to enjoy her coffee (cereal) and then do something quiet (read) until she wakes up. I got her a muffin and she was fine. Even hugged the muffin before eating it. When we get to the hospital she is excited because she remembers the elevators - better than remembering the surgery! Ha! We ride up 6 floors, register, and after a quick "WooOOOOOwwww!" at the fish tank and before she can even play with the toys they are calling her name. We go into the room and I sit her on my lap in 'the chair' and she gets quiet. I notice the Sesame Street finger puppets and start playing with her while the optometrist came in to do the initial evaluation.
I was really keen to know what they did since I knew babies can't
say their answers... she started with pupil reaction to light, then to reacting to light from different angles. She did some focus testing by having her look through a prism at an image that has now been split into 2 images to see if she flicks focus back and forth between the two. She had a flashlight with an end that had 1 one light, 2 green lights, and 1 red light in a diamond pattern and put on the red-green glasses and had her point to the lights (she even counted them aloud). She did distance testing by turning a television on and off. She had these slats that were grey with a square that was made of grey and white lines located somewhere on it. The slats started with very wide lines, making the square very obvious. She would (blind to the location herself so as not to unintentionally suggest the answer) flip the slat over and have Dania point to the square. She nailed it. LOL! They also did some perception testing with 3D images... Dania didn't like those very much, or, at least, wouldn't touch the images. She would say her sound for 'ball' and point but not actually try to touch the 3D ball - I guess that happens a lot with little kiddos. She did some other light testing that I have no idea what it did because I saw the back of her head and it didn't look any different from the initial testing - it might have been different coloured lights and the pupil reaction. So, all in all? This part took about 30 minutes and she sat
so well and they kept commenting on that. They also took an oral history from me and I told them about the adoption and that it was noted in her info given to us. I told them that I have always noticed she looks at things closely and doesn't pay attention to things farther away for very long and that my gut said it wasn't attention span because she will sit and play with her Leapfrog reader for an hour! I told them how it was my family doc that referred us to the eye doctor and how we saw him once, he told us to come back with the drops, and then he told us she was near sighted and referred us to the people that can deal with kids properly. Then she had to put the dilating drops in her eyes. Enter the tears - that I think were more from boredom and sitting still than anything. Now we had to go to the waiting room and wait for the drops to kick in.
She played, happily, and seemingly unaffected by the drops. She was not walking weird or seemingly having a messed up depth perception from the drops. She did disregard the books quickly and opted for staring at the fish tank at length. After about 30 minutes she asked me for Pocoyo. Now, this is a show on youtube that we watch sometimes and I wasn't about to say 'no' when I had no idea how much longer we were going to be. I also knew her vision must be screwy by now so I pull out my phone, find the show, press play, and her name is called. So, we are now going into this next part with an anticlimactic Pocoyo experience...
She was
so good! It blew my mind her patience! She wouldn't have this for me at home but she is also an inquisitive girl and was fascinated by the new activities going on close to her. She did ask for Pocoyo in between every lens trial though! So, this new session involved the Ophthalmology fellow and a student. They were both so nice and very patient and clearly used to working with kids (automatically lowered their chairs, put smiles on their faces and raised the tones of their voices). This was the part where an adult sits behind the big lens machine and looks at the alphabet chart (I know it has a real name) and tells the doc if number 1 or number 2 is more focused. For a kid? They have mum sit Kid on her lap and gently keep her head forward (I say gently because I'm sure for the 3 times I had to adjust Dania that others have had to do 30 or just brace their child's head). I think she has this fear/reverence for doctors. She has a love/hate relationship with them because the first bit of her life was composed of a lot of poking and prodding - especially in the mouth and ears - but has now experienced long-term results and 'get's it.' Anyway! He started with her right eye, chose a lens strength that was to an extreme (I don't know what extreme!) and holds it to her eye with a light scope and looks at her inner eye reaction. This is where he exclaimed, "oh my! Are you ever myopic!" He then tries a bunch of different strengths and just like with adults, flicks back to the one he thinks is right while going to extremes and ever-so-slight variances. He finds the one he thinks is good and then starts on the adjustment for her astigmatism. After about 15 minutes, he finds the right combo for the right eye. This whole time she has sat so still on my lap and listened to every direction from the doctor. He would say, 'oh, chin down,' and I knew he was talking to me but she would then put her chin to her chest and he would laugh, 'oh, not that much!' and she would bring it up a little. He kept telling her how smart she was. Made me really proud! It takes a bit longer for the left eye because she's done this all before now. He starts getting her eye to look at the right spot by saying, 'HEL-looooo!' To which she immediately says it back. The student is laughing off to the side and making his hand creep up on her and making faces - he's going to be good with little ones! After about 35 minutes total, the doc has the right combo and writes me a prescription and we sit and chat about what it means and I ask all my questions about what it was he was actually doing so I understood it enough to tell it here! At this point, I do put Pocoyo on the phone for her to watch! They laughed at the dancing that ensued.
The fellow told me that this was something that couldn't be corrected. She will need glasses forever. Ok, no big deal. I had initially thought it might be correctable but I am not as concerned with her keeping them on because she will wear sunglasses outside for a long time and I wear glasses and she points that out a lot. I think about how my prescription has a similar astigmatism to Dania's but that my eyes are 7 times and 5 times better than hers and I get major headaches if I sit at the computer without them. What does she get?!?! It makes me wonder if she has ever seen far away to understand near and far!? After a lot of my questions were answered, the fellow goes to get the ophthalmologist and she comes in to talk to us.
She sits down and immediately begins asking about Russia. What region is she from? How much history do you know? What tests did she have over there? How come it took so long to get here? Okay, the last one? Not a Russia thing... that was the Eye Clinic and Canadian health care system. I made sure she knew that (and please, I am not knocking it at all! I LOVE our healthcare. I just felt slightly off put because of this sudden barrage of questions and nothing to do with the eyes!). She takes a big breath after she asks what age we brought her home and then tells me that was the same age her son was when she brought him home from Moscow! HOLY MOLY! Seriously?!?!?! What are the odds?!?! It's been 6 years for her now since her adoption but as soon as she told me that she instantly warmed up and seemed so involved and concerned. She explained that her region was important because of ethnic physical features (wider set eyes, flatter bridge of nose, almond eyes) to be taken into consideration but also because she was curious about our knowledge of hereditary syndromes. It's none, by the way. She said that there are syndromes from that region related to cleft palate and myopia that would be worth considering for the long run. She asked if I would be okay with a referral to genetic medicine for testing to see if the 2 problems are genetically related or not. I have no problem with that! I was excited when she said it! So fascinating! I do a lot of genetic transcriptions in my job and was giddy at the thought of being part of this unique world; moreover, it would almost be like being given a link to her past that we don't know! This would be something that, if relevant, would affect any biological offspring and her long-term healthcare. Such syndromes, the most obvious being Stickler's syndrome, which I had heard of (thank you new job!) can progress quickly without intervention and treatment (aka, eyesight and hearing getting worse without aid) and can affect connective tissues and cause joint pains/arthritis in the long run. Despite what it can cause, just
knowing can help with future healthcare needs. I have to wonder if this ophthalmologist hadn't adopted from Russia herself if Dania's file would have stuck out in her immediate thoughts like this (remember, only yesterday she was given the file)? I mean, I do not doubt that this connection would have been brought up eventually by one of the many specialists but now that we have these 2 conditions to work with and a woman who recognized the regional relevance, we have a starting point for possible special action. SO DANG FASCINATING!
So much of Dania has seemed 'meant to be' in this process... this is a scientific aspect that I never could have predicted!
As I said, we went to the glasses store that was recommended as specializing in little ones and would also consider the flat bridge of her nose and we had frames within 10 minutes of walking into the store. I didn't expect a wide array of choice with what is considered 'baby' frames. I got to choose dark copper versus gold and then the colour of her plastic arm cover that wraps around her ears. Either way, the store kept proclaiming how good she was and she only had to sit for a total of 2 minutes (three times with different widths of glasses and twice for the pupil distance measure). At this point, she was asking for the ice cream I promised her for good behaviour. HAHAHAHA! We did get a pumpkin pie blizzard to share, but we also walked away with the order of glasses to be delivered in a week and a half! SO EXCITING! Seriously, like, beyond exciting to think that she will really
see for the first time because she was worse than I had thought! She won't have to stop and work to see things and will be able to catch things at a glance or in dimmer lighting! WOW! I can't wait! I can't even explain to her what she is about to experience! HOLY MOLY!